“As the largest federal civilian agency in the U.S., the Department of Health and Human Services is rich with data. However, it has lacked ways to scale and use the data to its full potential, in part due to considerable fears people have about sharing research data with others and with the involvement of artificial intelligence.”
“Focusing on the need to advance health science as well as a human-centered design practice to alleviate data-sharing concerns, the HHS Office of the CTO launched a data science platform in support of its Data Insights Initiative that aims to address these issues, its chief Ed Simcox told attendees of the GovernmentCIO Media & Research AI and RPA CXO Tech Forum last week…”
“Simcox and his team ultimately identified two recurrent themes that people felt prevented them from sharing data. The first was that HHS and its affiliated agencies are starving for data insights, but that they hold a great reluctance to sharing data due to individual privacy regulations, such as HIPAA…”
“The second was that people want a sense of stewardship over the data they collect. Simcox raised the point that researchers who have gathered years of data do not necessarily want to block others from using it; some are concerned that their data can harm others based on how it is analyzed, and consequently result in poor policy decisions…”
“Data stewards will be able to access the real-time computing environment to see how their data is being used, and will also be able to view a historical record dashboard to see who accessed their data, at what time their data was accessed by a user, and what algorithms the data was run on so they can run it themselves, Simcox said.”
“Another critical component for data stewards using the platform will be automated data use agreements (DUAs)…” Read the full article here.
Source: HHS CTO Reveals New Data Science Platform to Address Sharing Fears – By Faith Ryan, December 10, 2019. GovernmentCIO.
