“Broad and equitable data sharing can be interpreted many ways. For NCI’s Office of Data Sharing, this means balancing the support of exciting science and innovation and the needs of research and participant communities with privacy and realistic expectations. This balance is possible when the policies we create acknowledge the benefits and challenges the public, research, and participant communities experience as they share their information to advance disease knowledge and improve healthcare. As we continue in this era of big data and data sharing, we want to ensure everyone’s voice is heard. There are many ways you can make a difference! Here are a couple of opportunities where your comments can help shape the landscape for making data sharing broad and equitable.”
“At a Federal government level, you can share your perspectives on the Federal Data Strategy by Friday, November 16…” Read the full article here.
Source: Shape the Data Sharing Landscape: Make a Difference – By Vivian Ota Wang, November 8, 2018. NIH.
